tag:blogger.com,1999:blog-70662825008275004682024-02-19T07:10:22.470-08:00Muscles To Breathe "Breathing Fitness Into Life" - Inspiring others with Cystic Fibrosis to live a life of healthy nutrition & daily exercise. Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.comBlogger31125tag:blogger.com,1999:blog-7066282500827500468.post-23892503835139212192017-01-29T22:30:00.001-08:002017-01-29T22:31:34.294-08:00Blog Make-Over!Welcome to my blog!<br />
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I am currently giving it a make-over. As you can see it has been some time since I have written, so, thank you for your patience as I beautify my page!</div>
Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com0tag:blogger.com,1999:blog-7066282500827500468.post-78012865199371406822012-01-31T23:41:00.000-08:002012-02-01T00:03:29.289-08:00Kalydeco APPROVED!!!<div style="text-align: center;"><span class="Apple-style-span">I can't even begin to describe the feeling I had when I woke up this morning, got online, and read about what I have been waiting for! Kalydeco was approved by the FDA! As I read this, I couldn't help but cry tears of joy. I soon ran as fast as I could to my mothers room to shout the amazing news. The entire morning was filled with texting friends and talking with people about how excitement there was now in the CF community. O</span>nly 4% of the CF community have the mutation that this drug targets, and thats one of mine! When I first heard about Vertex having drugs in clinical trials a couple years ago, I never dreamed the day would be here already. I had heard the rumors of how healthy this pill made them feel. How much they could actually do during the day now and feel almost NORMAL. I read about how they could RUN. I remember one night about a year ago after hearing about how a fellow cyster could run, I had this crazy dream. In my dream I was on a track running and running and running; running up the bleaches and around without being crazy out of breath or coughing. I remember waking up and thinking one day I will do that, I hope I get the chance to do that. Today gave me so much more hope than I have ever had before; which let me tell you was a lot before because I have always been a glass half full type of person about drug improvement.) I am going to start trying to run so when I get Kalydeco I won't stop! I long for the, which will be in a month or two, where I actually get these "lightening" pills. This will hopefully improve my lung function by at least 10% so I can live longer and have an amazing future. Studies have even shown that it will also help me maintain and even gain weight! If it does then hopefully within this next year my feeding tube will be outta here! I simply can not wait for what God has in store for my future!</div><div><br /><div style="text-align: center;">Smile on my face all day long!</div><div style="text-align: center;"><span class="Apple-style-span" style="color: rgb(0, 0, 238); -webkit-text-decorations-in-effect: underline; "><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiHVX3fuszi_aqvwXtx7lYi9JPEvm_csiN_E7vhs2bjLCD8VrHZtfw02qpXOF1gg7x8AzfKlPovwbHvCRPqjRprIQkSFezYMYZMtwuu2wO4UInXWl9GG98EA2pwOH1cPiJjlFEpaPb4TLZd/s400/IMG_7380.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5704074530620013042" style="display: block; margin-top: 0px; margin-right: auto; margin-bottom: 10px; margin-left: auto; text-align: center; cursor: pointer; width: 300px; height: 400px; " /></span></div><div><span class="Apple-style-span" style="color: rgb(0, 0, 238); -webkit-text-decorations-in-effect: underline; "><br /></span></div><div><br /><div><br /><div><span class="Apple-style-span">For those of you who dont know what Kalydeco is here are a couple links that give a brief explanation...</span></div><div><span class="Apple-style-span">http://www.fda.gov/NewsEvents/Newsroom/PressAnnouncements/ucm289633.htm</span></div><div><span class="Apple-style-span"> http://online.wsj.com/article/SB10001424052970204740904577195144014038270.html<div><br /></div><div><br /><div><br /></div></div></span></div></div></div></div>Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com6tag:blogger.com,1999:blog-7066282500827500468.post-19183703144165970882012-01-13T08:32:00.000-08:002012-01-13T08:55:58.750-08:00New Year and i cant wait!I can not believe that it is already 2012. The years keep going by faster and faster; not okay! I must say that this year has started off pretty darn perfect though, and I can not wait for what God has in store for my life this year. My year started off with a little vacation in South Lake Tahoe with my family. It was so much fun! This last week was my first doctors appointment for the year a first visit back since I had been on i.v. antibiotics. When I did my pft's to determine whether I got my picc line taken out in December, my lung function was at 53%. I had been so hopeful for this visit because it had been one month off antibiotics and I still wasn't really coughing at all :) I stepped on the scale and waited for the number to go up. I hate reading my weight in kilograms and always snap at the nurse right away asking what my weight is in pounds. Very eagerly of course I asked the second the numbers stopped and she said "107!" Yay! Thats the most I have ever ever ever weighed on the Stanford scales! Good start to my appointment. Now to just to take the deepest breath in I can and to blow every little bit of air out of my lungs as fast as I can...54% baby! Not the best but I can't complain since it did at least go up one percent! Next visit in April my goal is 110 pounds and to blow a 60% <div><br /></div><div>My goals are high now and that means I am kicking my butt into gear this year, and getting every little bit of air that I can. This week I finally got to start ballet up again! For those who don't know, dancing is my passion in life and I have danced since the age of three. These past four years I haven't been dancing because of school and what not. I believe not dancing, and not doing as much physical activity, has been one of the causes of why my numbers have dropped so much since high school. Ballet brings so much excitement and pure joyfulness back into my life. For Christmas my mom said she would pay for my dance lessons and I could not have asked for a better gift. After my first class back to ballet, walking extremely slow because my legs were so sore, I could not help but cry because I was so happy and thankful to be dancing again. There was a point this last year, when I was in and out of the hospital, that I was afraid that maybe it would be too difficult to dance again. I now know I can dance, and I have the be support system to help me through it and to get better. I'm hoping to start running again on my days off from ballet twice a week, and my softball games. Oh yea, I also joined a softball team for fun! </div><div><br /></div><div>The one thing that I simply have no patience for, is for the Vertex drug, Kalydeco to be approved and released by the FDA. This drug is going to change my life forever and I can't wait to see my numbers go up even more. My doctors said that they had a meeting with someone this week and they are predicting it to be out in 2 months!!!! Ahhhhh!!! Two months to get my lungs into shape so they can become healthier than I ever thought would be possible again! I thank the Lord every day for what is going on at Vertex Pharmacuticals because I know with out all of the prayers prayed by every single person with Cystic Fibrosis and those effected by it, this would not be possible. This year will be one for the books! God is so good!</div>Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com0tag:blogger.com,1999:blog-7066282500827500468.post-44772697729718940282011-12-28T23:22:00.000-08:002011-12-29T08:04:36.432-08:00You will always be in my Heart<div><br /></div><div><span class="Apple-style-span" style="color: rgb(0, 0, 238); -webkit-text-decorations-in-effect: underline; "><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcUQOC3Y_eNccKdpgLkFXF0-CzIPeYAr5W8-VTHMA9EOUNxQC_qo1UMA_8ZB0uCHr_eq5mlymi6ypHdTpjCocGzNW4qo_yr010PLWGZv9VQ3T4IjZBcQYjPrZqr8OsgRfIp8OjpE8x9WJ5/s400/223071_2297123994487_1440720306_32735024_4617293_n.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5691452285970365026" style="display: block; margin-top: 0px; margin-right: auto; margin-bottom: 10px; margin-left: auto; text-align: center; cursor: pointer; width: 400px; height: 328px; " /></span></div><div><span class="Apple-style-span" style="color: rgb(0, 0, 238); -webkit-text-decorations-in-effect: underline; "><br /></span></div><div><br /></div><div><span class="Apple-style-span">So, I don't even know where to start, mostly because I don't know where I left off last time. So much has changed since last time i wrote. I have moved back to my home town Redding. I started living at my momma's house, moved out and got my own place, got sick, got well, and the next month got sick again. Found out I had to move back in with my momma because the house I was living in had a mold issue. In July I had a feeding tube placed, which hurt like hell! Im finally starting to gain weight since I've been sick so many times since I have had it. The plus side is that I have not lost any weight at all. Even with all this moving around and having many changes going on in my life there has only been one thing on my mind everyday. My best friend, Alyssa Crank, passed away July 17 because of Cystic Fibrosis. Even though I knew that it was coming, I never thought that she would pass away that soon. Part of my heart was torn that day. This is when I hate all those little cliches in life, like, life isn't fair. Life truly is not fair, and it does not make make any sense. She was the biggest fighter I knew, the strongest person. Alyssa, in her tiny little body, had the biggest heart, best sense of humor, and the strongest will to live. It really sank in at her memorial service. She was always there for me no matter what, she was a true friend. I can't even start to explain how much I miss her. It's very hard not to be selfish and want to see her again when I know she is laughing without coughing, dancing without getting short of breath, and celebrating the amazing breaths that she can now take in heaven. I still can't believe she is gone though. It scares me so much because she passed away from something that I have. It's made my disease more real to me than it ever has been before. Loosing has made me try to fight this battle even harder. I can't and I will never give up because she never did either. Words really can't explain how much it hurts to loose you best friend. </span>I long for the day where I get to see you again and we can both truly breath forever.<span class="Apple-style-span"> Alyssa Marie Crank you are forever loved and you will always be in my heart. I love you and miss you.</span></div><div><span class="Apple-style-span"><br /></span></div><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhIv832QI7Zz0f1fGFUUuNpbBJKYlc-jjehHhJZG_joPBGnEvuZj5gc8ckUwV57H39GdeX58ahduqNUSky-_WbgeAGfNJqMWuh3zENxEo28-1yCqUFviLrFhM1sjo7vHXYiqIi6gJjuw-xb/s1600/305753_2466246462443_1440720306_32941636_74423301_n.jpg" onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 225px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhIv832QI7Zz0f1fGFUUuNpbBJKYlc-jjehHhJZG_joPBGnEvuZj5gc8ckUwV57H39GdeX58ahduqNUSky-_WbgeAGfNJqMWuh3zENxEo28-1yCqUFviLrFhM1sjo7vHXYiqIi6gJjuw-xb/s400/305753_2466246462443_1440720306_32941636_74423301_n.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5691453032165130658" /></a><br /><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4hpYO5_nyUmmzwMSH4TqiGcaJQ_jOnFGpmK4uDlLXtdsBC6qfAr6MNVPIoy2thKWd30Kz4aer7ezk7CPzC4zhywplddLZqbT1Z3up-JwteUBz31N-JUA2nIfRA1Ca-EiSHrrQlRK1MuM7/s1600/281695_2287979765887_1440720306_32722211_5400715_n.jpg" onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 400px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg4hpYO5_nyUmmzwMSH4TqiGcaJQ_jOnFGpmK4uDlLXtdsBC6qfAr6MNVPIoy2thKWd30Kz4aer7ezk7CPzC4zhywplddLZqbT1Z3up-JwteUBz31N-JUA2nIfRA1Ca-EiSHrrQlRK1MuM7/s400/281695_2287979765887_1440720306_32722211_5400715_n.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5691452868893287810" /></a><div style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjcUQOC3Y_eNccKdpgLkFXF0-CzIPeYAr5W8-VTHMA9EOUNxQC_qo1UMA_8ZB0uCHr_eq5mlymi6ypHdTpjCocGzNW4qo_yr010PLWGZv9VQ3T4IjZBcQYjPrZqr8OsgRfIp8OjpE8x9WJ5/s1600/223071_2297123994487_1440720306_32735024_4617293_n.jpg" onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}"><br /></a></div><span class="Apple-style-span"><div><span class="Apple-style-span"><br /></span></div><div><br /></div></span><div><br /></div><div><br /></div>Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com1tag:blogger.com,1999:blog-7066282500827500468.post-19058155242120355232011-01-29T01:14:00.000-08:002011-01-29T01:15:05.584-08:00Finding your Motivation<!--StartFragment--> <p class="MsoNormal">Trying takes every fiber of body. For some reason to keep trying is the most difficult when times aren’t the hardest.<span style="mso-spacerun: yes"> </span>I get exhausted so easy. You think that your LIFE and the number of days you have depending on how well you take care of yourself would be enough of an influence. I guess its not so much as its hard for me to keep on trying but for me to stayed focused on the future 100% of the time.<span style="mso-spacerun: yes"> </span>I have to stay focused and think about my future every single day, the moment I wake up, the second I get ready for bed, and many times in between.<span style="mso-spacerun: yes"> </span>I want to be able to live in the present, but for me to have more time I can’t.<span style="mso-spacerun: yes"> </span>Inhalers all the time wear me out.<span style="mso-spacerun: yes"> </span>I have to always remember.<span style="mso-spacerun: yes"> </span>Remember is the hardest when I’m feeling good; like right now.<span style="mso-spacerun: yes"> </span>I get so excited that I’m doing so well that I forget that I have to keep at pushing more so I stay like that.<span style="mso-spacerun: yes"> </span>This time it has been a little bit easier because I haven’t just been focusing on life in general, but another life.<span style="mso-spacerun: yes"> </span>To clear the air right away, no, I am not pregnant nor plan on getting pregnant anytime soon! BUT I do eventually want to have a kid. Talking to the doctors this last time helped me become more positive and confident in myself that I will one day be able to have kids; as long as I keep trying to get my lung function up and it stay up.<span style="mso-spacerun: yes"> </span>After being off of I.V. antibiotics for about a month now my lung function is up to 60%! Now for me, that’s good, since I haven’t had numbers that high in a while.<span style="mso-spacerun: yes"> </span>I want to get them higher though. My goal is to get a steady baseline of 65%.<span style="mso-spacerun: yes"> </span>Having this new motivation (even though I don’t have anything planned for the near future) has helped me see life in a new, positive way.<span style="mso-spacerun: yes"> </span>I encouraged everyone of you CFer’s to seek out that motivation and keep fighting whether its good or bad times; cuz remember you gotta keep on fighting today to get a better tomorrow. Sending love to all of my CFer’s out there, love you all!</p> <p class="MsoNormal"><o:p> </o:p></p> <p class="MsoNormal">B</p> <!--EndFragment-->Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com2tag:blogger.com,1999:blog-7066282500827500468.post-62133192663264324232010-11-13T22:39:00.000-08:002010-11-13T22:48:21.410-08:00rushing through life a bitI know I haven't posted in such a long time, so here it goes. Lately, everything in my life has been going perfect. I've been able to juggle both work and school, and still not get sick. Everything with my family has been great and things with the boyfriend couldn't be better. Even though things are going so good, I can't help the feeling but to want to more. I'm feeling great and I have been out of the hospital for I think 6 months now. It makes me so happy. Feeling like this makes me want it not to end. This makes me want more while I'm still feeling good because I know the second my health goes down hill my life freezes. When I feel this great I want to do everything and go everywhere.; which is the bad part. I feel good so I go out and have fun. I think I can handle it but eventually I know I will start spiraling down. It's so hard to to have to keep yourself from having fun and living life so that way you can live more life (I hope that just made sense.) I just want to all now; so that way time doesn't run out before I achieve it. <div><br /></div><div>~B</div>Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com1tag:blogger.com,1999:blog-7066282500827500468.post-3331639311290221352010-10-04T00:26:00.001-07:002010-10-04T00:27:42.204-07:00To all my CFers...<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjM3wa-cS_ZENTLJ_HkOtClIyI3dUlf2igR6Z09qLs4i-zWHOFAd7ERlh4MhI-mhH6E2iw6QzAKhLgriL66ID46WKa0VvBWFPpnEGi5Ya2au3lSdjddl_x6OCmAniswjrQBoVf-qUUHgySj/s1600/Photo+49.jpg"><img style="display:block; margin:0px auto 10px; text-align:center;cursor:pointer; cursor:hand;width: 400px; height: 300px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjM3wa-cS_ZENTLJ_HkOtClIyI3dUlf2igR6Z09qLs4i-zWHOFAd7ERlh4MhI-mhH6E2iw6QzAKhLgriL66ID46WKa0VvBWFPpnEGi5Ya2au3lSdjddl_x6OCmAniswjrQBoVf-qUUHgySj/s400/Photo+49.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5524089087228666002" /></a><div style="text-align: center;"><br /></div>Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com0tag:blogger.com,1999:blog-7066282500827500468.post-76439703484316204642010-08-27T08:01:00.000-07:002010-09-07T09:31:53.917-07:00Can you have a healthy CF diet?Having Cystic Fibrosis, I am put on an insane diet. Not the normal diet that most of you know. My diet is, pack in as many calories a day, hoping I've hit 4,000 calorie; and to make sure it contains a lot of fat and protein. For those of you that don't know, Cystic Fibrosis also effects my pancreas. My pancreas does not produce enzymes, such as lipase, that breakdown fat and protein; resulting in no absorption of fat or protein ever. In order to try and fix this I take enzymes with practically everything I eat. It is extremely hard for me to gain weight and the second I gain one pound I usually jump for joy. <div><br /></div><div>With being put on this enormous diet I tend to only focus on how much calories, fat and protein I can consume. Since I focus on this, the things I tend to eat probably aren't that healthy for me. I want to challenge all my CFer's to try and eat healthy getting in all the veggies, fiber, grains, (basically all the food groups), while still getting all the extra calories in the whole required for the CF diet. If any CFer's have some tips out there I would greatly appreciate them! </div><div><br /></div><div style="text-align: center;"><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJhhmxlmmlJBTKdOxd6QHDdM1rpgconJu3l250S-TgibDN4B1qf4Unwk0hFxLsvFeqXUOksDwWS84lvNzVkC97t1WFavbyVmQwYLbG66kOBOSmSEj2zs-0p3dhOWBL9nKGULAY5-90eryt/s1600/pyr1.jpg"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJhhmxlmmlJBTKdOxd6QHDdM1rpgconJu3l250S-TgibDN4B1qf4Unwk0hFxLsvFeqXUOksDwWS84lvNzVkC97t1WFavbyVmQwYLbG66kOBOSmSEj2zs-0p3dhOWBL9nKGULAY5-90eryt/s320/pyr1.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5514210072547732098" style="cursor: pointer; width: 320px; height: 248px; " /></a></div>Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com1tag:blogger.com,1999:blog-7066282500827500468.post-34410384107974212862010-08-25T08:24:00.000-07:002010-08-27T07:59:57.795-07:00Where to begin?!?I haven't posted in FOREVER it seems like!!! SO much has happened since I last blogged. A lot has changed so fast in my life. <div><br /></div><div>Apparently I'm going to become a professional mover! About almost a month ago my originals plans of staying in Fresno got flipped. I ended up having to leave my job and I moved back home for a couple weeks while frantically figuring out my next move. Notice this move was not due to my health. So with a little good luck I was able to work it out with a couple of my old roomies in Sonoma since they hadn't found a house yet for the school year. We found a cute little four bedroom house, filled out applications, signed the lease, and moved in about two weeks later. I'm so lucky that Santa Rosa Junior College also hadn't had class registration for this fall semester yet, so I was able to sign up in time for classes too! I'm also changing my major to Dietetics and want to be a sports nutritionist or a clinical dietician. I was able to sign up for a couple nutrition classes and so far I love them. </div><div><br /></div><div>My health through all this has done surprisingly well. It's been since April that I last went into the hospital. I think the new switch off of Tobi and Collistin must be doin the trip. I'm hoping I can stay out for over 6 months this time; the goal is to go until Christmas without having to go in. One big thing that I think has helped a lot is that, I definitely tried to not stress at all, which was a little hard, but paid off considering that I haven't gotten sick through all this re-arranging. That's one thing that I have realized about myself; since I know stressing does horrible things for my body, I have become a very care free person and learned to go with the flow on things.</div><div><br /></div><div>I'll be trying to post way more often as long as I dont get too overwhelmed with school and work. Even though I've been all over these past few months, I'm extremely excited for this next part in my life, because I feel like it's where I'm suppose to be :) </div>Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com0tag:blogger.com,1999:blog-7066282500827500468.post-63603979523409819662010-07-05T12:37:00.000-07:002010-07-12T18:54:58.669-07:00A couple things here<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi3DELBtG4bxrAeQd-k32M54eJVxNVOveoV5fTUgJvE0JrIUeCH2oGhkIff1fxyaG1nc-iohYg4b5wgvfyibG24_8uHZmijujS6-EXA6VCbiFcSrVGcTAN-X-wgi8GmCeYaAZGJGzTv1yVK/s1600/DSC01420.JPG"><img style="float:left; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 320px; height: 213px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi3DELBtG4bxrAeQd-k32M54eJVxNVOveoV5fTUgJvE0JrIUeCH2oGhkIff1fxyaG1nc-iohYg4b5wgvfyibG24_8uHZmijujS6-EXA6VCbiFcSrVGcTAN-X-wgi8GmCeYaAZGJGzTv1yVK/s320/DSC01420.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5493198834667967186" /></a>I got my shirt in the mail from Piper! That's me in it above :) It's pretty sweet and I'm so excited to be a part of CF awareness. To know a little more about Piper, go and visit her blog, amatteroflifeandbreath.blogspot.com. Next on the list, work has been going fantastic! The long week of eight hour shifts, I survived (haha). My body made it through. I'm still feeling pretty good. I'm very sad though because my manager is putting in his two weeks. He is really awesome and invited me into the Buckle family in Fresno the first second. The other day when we were both on our lunch he started asking me about my Cystic Fibrosis more. He wondered what exactly it did and what it affected. I told him about all of the basics and how I have to do treatments everyday, about hospital trips, and iv's; all the good stuff right. He asked me "So does it keep getting worse?" When ever I answer this question, it's always interesting to see what the reaction of the person will be. I told him that yes it does, my life expectancy is about 37. His face and answer made me happy. He told me that how can that be; that he has never seen anyone so happy and smiling all the time. Knowing that people can tell that I have so much hope, joy, and faith in life makes me feel amazing that I can be inspiring to other people around me. <div><br /><div>Next. I've been slacking on exercising, but i start ballet this this thursday and I can't wait to be picking back up with my passion. </div><div><br /></div><div><br /></div><div style="text-align: center;"><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiWOUy7wG60tY5IGkrQS0f06cMWt9PyrbIEtyYtgRHPRglu4Hzo8OcnOFSlqBkrjJvSDtjiZvGKIzpzUUOnOvGJFRyCk1x6rd960uBO3oZ-m54TF6-xe9FF54fSsjmeU6j3zph4efdzsV1l/s1600/DSC01421.JPG"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiWOUy7wG60tY5IGkrQS0f06cMWt9PyrbIEtyYtgRHPRglu4Hzo8OcnOFSlqBkrjJvSDtjiZvGKIzpzUUOnOvGJFRyCk1x6rd960uBO3oZ-m54TF6-xe9FF54fSsjmeU6j3zph4efdzsV1l/s200/DSC01421.JPG" border="0" alt="" id="BLOGGER_PHOTO_ID_5493200196661847202" style="cursor: pointer; width: 200px; height: 134px; " /></a></div><div>Health. I finished my Tobi 28 day cycle and I've started my next 28 day cylce inhaled anti-biotic Colistin. I've heard lots of good stuff about this med and I did a week of it when I was in the hospital. This Colistin better kick the psudeo in my lungs butt so that way I can continue to stay feeling good. The only thing I hate about this, is the fact that I have to mix it myself every single time; drawing sterile water out and mixing it with the powder. This stuff better do it's trick because the nausea I get from it stinks, literally haha. I only get it for about the first minute or so, but i made the mistake the other day of eating right before I did it. Let's just say I won't be eating before I do my Colistin again, after my breakfast decided to give a surprise visit while taking it. Other than that I'm doing great, juts hoping to still get my weight up a little more. <div><br /></div><div>On June 24th, a little boy named Conner, touched my heart. He passed away after battling Cystic Fibrosis and Prune Belly Syndrome for seven years. This breaks my heart, and makes me frustrated, because it's not fair. I couldn't even imagine how much strength and faith this little boy had. His mother blogged about his faith about heaven. She talked about how strong he was to endure so many weeks, years, of the hospital and iv's. It scares me. It just isn't fair that his time here on this earth he had to endure so much pain. Conner spread so much happiness through all of it though; he spread so much LOVE. At his memorial service everyone wore the color red; the color of LOVE. I did not get to ever meet him, but I will always remember Conner. Love, love, love, always, always, always.</div><div><br /><div style="text-align: center;"><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhYHVTkzm1bFXb0ltaZgSksFJ9dd861Av958_AfPY4_2DNZqatoAuBhb3Us5oCJSCoCqeMlNBU1G4q21t7EJT0c0u3MXrs8ZBXHvI_lvDC4oBaqoaqaIw_cqV2eR_jAkQzRWdJDDEUWOuJ0/s1600/ONEOFAKINDREDROSE.jpg"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhYHVTkzm1bFXb0ltaZgSksFJ9dd861Av958_AfPY4_2DNZqatoAuBhb3Us5oCJSCoCqeMlNBU1G4q21t7EJT0c0u3MXrs8ZBXHvI_lvDC4oBaqoaqaIw_cqV2eR_jAkQzRWdJDDEUWOuJ0/s320/ONEOFAKINDREDROSE.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5493201599390532194" style="cursor: pointer; width: 320px; height: 250px; " /></a></div><div style="text-align: center;">a RED rose of LOVE for Conner</div></div></div></div>Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com0tag:blogger.com,1999:blog-7066282500827500468.post-88934864921441179772010-06-30T20:15:00.000-07:002010-06-30T21:01:44.640-07:00Vertex...So Close!<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgGN_3Wu3etX2as8lZOSjZUoyPqAc_YuNQRMyy3boAEigbCdy_7qxqDskzsC7hn9QF2u31AYWxw5cp3YMU9O4OfkihpKb-qeRZRY26fXIYD_vBfMhOqun0BYRk6ElGu0l389RtKDr-cnj3L/s1600/header1.png"><img style="float:left; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgGN_3Wu3etX2as8lZOSjZUoyPqAc_YuNQRMyy3boAEigbCdy_7qxqDskzsC7hn9QF2u31AYWxw5cp3YMU9O4OfkihpKb-qeRZRY26fXIYD_vBfMhOqun0BYRk6ElGu0l389RtKDr-cnj3L/s320/header1.png" border="0" alt="" id="BLOGGER_PHOTO_ID_5488781697574145122" /></a><br />So, we all know that there is no cure for Cystic Fibrosis. I have always known this. No cure. It is the worst. Even though this is true, I, my family and friends, have always hoped that one day some one would find a cure; or something close. Since 2006, Vertex Industries has been working on two amazing drugs that seem to me, unbelievable. When I heard that Vertex was working on medications to target the actual cause of Cystic Fibrosis, my heart literally leapt with joy. I remember reading about VX-770 and VX-809 (the two drugs) for the first time earlier this year. Reading about how these drugs would target the defects in the mutations G551D and DeltaF508. Was I reading it right? Yes, I was! These two drugs deal with my two gene mutations!!! As i kept reading about them I started to cry. Tears of joy rolled down my face. I seriously couldn't believe it. I scrambled calling my momma and reading it to her over the phone. Basically, VX-770, which is in the last phases of clinical trials before getting approved by the FDA, helps the CFTR proteins open up and work properly. VX-809, in phase two trials, corrects the placement of the CFTR proteins, so then VX-770 makes them work. Can you even imagine how smart the people have to be to figure out these messed up cells and fix them must be?! Amazing. Cystic Fibrosis is so much more complicated then people describe it to be, which makes it very hard to even imagine that scientists are making such a breakthrough already. I have talked to people about the VX-770 study. Lung function has improved like crazy, like almost 15% higher. That is a big deal, beyond a big. I have read what someone who is in the clinical trial wrote and said they can't believe they feel HEALTHY. Now, a lot of us with CF will say we feel good, because to us coughing everyday is our normal good. To feel healthy I can't even imagine. This woman said that she has even backed off a little bit on doing nebulizers, and her lung function has still improved. Crazy! If I can stay healthy enough, I hope to become involved in these life changing clinical studies. These drugs could change my life. Yes, I know this is not a cure, but hey, I think its getting pretty damn close! Knowing that these target me specifically (my mutations) it could help me have so many more tomorrows. It gives me hope to continually want to try and get even better so that when these get approved, my lungs will again hit PFT numbers that I never thought I would see again. Please continue to believe, have hope, faith, and pray that these drugs will continue in their incredible movings toward getting approved by the FDA; because when they are, it will be THE best day of my life. <div><br /></div><div><br /></div><div><br /></div><div style="text-align: center;">To help you understand what it looks like (not my x-rays):</div><div style="text-align: center;"><br /></div><div style="text-align: center;">These are "Normal" Lungs</div><div style="text-align: center;">(notice how clear they are) </div><div style="text-align: center;"> <a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhIX09a0fxCDq0_Ed6oiRUzgLEkB6nqLOy2L0qJT-PONJYeBnhnvA6TLh_GY2voaw9NOaRD145UlybF37o9nlxA5Y0Iby50GlOZ42fWs_HBVCIu3z6kdKCZN-1qS2H1-LrQOasnzdby1HzC/s1600/BTMH_COPD_image_generic_chest_x-ray_normal.jpg"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhIX09a0fxCDq0_Ed6oiRUzgLEkB6nqLOy2L0qJT-PONJYeBnhnvA6TLh_GY2voaw9NOaRD145UlybF37o9nlxA5Y0Iby50GlOZ42fWs_HBVCIu3z6kdKCZN-1qS2H1-LrQOasnzdby1HzC/s320/BTMH_COPD_image_generic_chest_x-ray_normal.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5488781908490085122" style="cursor: pointer; width: 240px; height: 320px; " /></a></div><div style="text-align: center;"><br /></div><div style="text-align: center;"><br /></div><div style="text-align: center;">These are lungs of Cystic Fibrosis</div><div style="text-align: center;">(the cloudiness is scarring) </div><div style="text-align: center;"><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjp4WkEDh1o4kzdwOe_cSdvoI5aDvu7t01toH7LLCGeUmxOfheVD736WnBy9w9TOyErHRueyAj9v4_h8xnLMLVSvEKl6UTmj-NbszZfW8brtd_HkIgaRq22CLpadRaBVThyphenhyphenjrw2vsxXD5h4/s1600/19D8F342-CE2A-4F8C-8663-62C9B38DD25D.png"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjp4WkEDh1o4kzdwOe_cSdvoI5aDvu7t01toH7LLCGeUmxOfheVD736WnBy9w9TOyErHRueyAj9v4_h8xnLMLVSvEKl6UTmj-NbszZfW8brtd_HkIgaRq22CLpadRaBVThyphenhyphenjrw2vsxXD5h4/s320/19D8F342-CE2A-4F8C-8663-62C9B38DD25D.png" border="0" alt="" id="BLOGGER_PHOTO_ID_5488781915190531298" style="cursor: pointer; width: 225px; height: 255px; " /></a></div>Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com2tag:blogger.com,1999:blog-7066282500827500468.post-59085529669456146682010-06-20T23:46:00.000-07:002010-06-30T18:20:17.711-07:00Dear Daddy,<span class="Apple-tab-span" style="white-space:pre"> </span>Thank you so much for everything you do for me, it means the world. I feel terrible that I can't drive home for father's day this year; my first father's day away and hopefully that last. You've always been supportive in my dreams, whether it be dancing my heart out, going to college, or more relevant to today making sure I keep my health in check. One memory that sticks out a lot is the dance "Butterfly Kisses" for Kids Unlimited several years ago. It was the father daughter dance that I got to do ballet in and the daddy's got to join us. I remember the practices at I think it was or one of the middles schools, the outfits with light pink, the picture we took in our outfits, and the dance on stage. Crazy how vivid I can remember it, and how fast time flies! I know I'm growing up, but I will always be your little princess. It was fun though. I know we've had our bumping of heads but this past year or so, our relationship has been blessed. I am thankful everyday that we have become so much closer and that our relationship is continually growing everyday. Now, you need to rest up and let that knee heal, so we can go dirt biking! I hate being away from family and holidays; hopefully I will be visiting home soon. Happy Father's Day Dad, I LOVE YOU!<div style="text-align: center;"><br /></div><div style="text-align: center;">~Sunshine </div><div style="text-align: center;"><br /></div><div style="text-align: center;"><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0StagXScSeGRW58XJZX8W6G_obEbaMW7e-kiMcflUby4XiQYILIconUaHzL3VnArLqS5SS0kMM6ejvQ9GqwIi87SUdbQAI-ndTQVZddtbq1RbriLd951zeDrmR7XYyYp_j8WtdZuHV1qd/s1600/sc018d6727.jpg"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi0StagXScSeGRW58XJZX8W6G_obEbaMW7e-kiMcflUby4XiQYILIconUaHzL3VnArLqS5SS0kMM6ejvQ9GqwIi87SUdbQAI-ndTQVZddtbq1RbriLd951zeDrmR7XYyYp_j8WtdZuHV1qd/s320/sc018d6727.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5488741350906346338" style="cursor: pointer; width: 223px; height: 320px; " /></a></div><div><div style="text-align: center;"><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPePdJ0uynegAOOPytsI2CXlS75qc_dnRIJ9LCnv4C98zYvD0P-JJ_6ZgLlSUG0Aq4Ql3kc8p9_drRrRPW0KNDBos7WjquBc-oYc86mGWzwj2GxuFJsfxrnmcZQaBb8j5DQ2RRgZgf00eq/s1600/24122_101019723266497_100000754094437_27646_7606313_n.jpg"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhPePdJ0uynegAOOPytsI2CXlS75qc_dnRIJ9LCnv4C98zYvD0P-JJ_6ZgLlSUG0Aq4Ql3kc8p9_drRrRPW0KNDBos7WjquBc-oYc86mGWzwj2GxuFJsfxrnmcZQaBb8j5DQ2RRgZgf00eq/s320/24122_101019723266497_100000754094437_27646_7606313_n.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5485118762652124850" style="cursor: pointer; width: 320px; height: 240px; " /></a></div><div style="text-align: center;"><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhK6RTclzpEUKA-5MmXdjs9qUTxVopom8zzc6cTrfpfvJubJDXzU6SEhuufOwciE-S3CGs3iXaOqkzGBLlwmaLBg6KDIuHX9uYq6n40kKzIPH2xl59niTfRZCyrmb2t3Jj7vbv8nSNyjMYY/s1600/24122_101018199933316_100000754094437_27600_5851808_n.jpg"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhK6RTclzpEUKA-5MmXdjs9qUTxVopom8zzc6cTrfpfvJubJDXzU6SEhuufOwciE-S3CGs3iXaOqkzGBLlwmaLBg6KDIuHX9uYq6n40kKzIPH2xl59niTfRZCyrmb2t3Jj7vbv8nSNyjMYY/s320/24122_101018199933316_100000754094437_27600_5851808_n.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5485118757772072450" style="cursor: pointer; width: 320px; height: 240px; " /></a></div><div style="text-align: center;"><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi3ggFOkEj7QRNXZddO0Fm83yYlXxrPboAkzHb3O1CUAodb6YQ-GRAsPRTaJbIx7EfflVhlW3knZsiPzkqdT9Z_tpNVgwvujifCbFBhH2yV4o09R_-t-hKr69cgcAbVobms4sTuWJj81qFL/s1600/27085_100857986616004_100000754094437_23062_7936714_n.jpg"><span class="Apple-style-span" style="color: rgb(0, 0, 0); -webkit-text-decorations-in-effect: none; "></span></a><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi3ggFOkEj7QRNXZddO0Fm83yYlXxrPboAkzHb3O1CUAodb6YQ-GRAsPRTaJbIx7EfflVhlW3knZsiPzkqdT9Z_tpNVgwvujifCbFBhH2yV4o09R_-t-hKr69cgcAbVobms4sTuWJj81qFL/s1600/27085_100857986616004_100000754094437_23062_7936714_n.jpg"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi3ggFOkEj7QRNXZddO0Fm83yYlXxrPboAkzHb3O1CUAodb6YQ-GRAsPRTaJbIx7EfflVhlW3knZsiPzkqdT9Z_tpNVgwvujifCbFBhH2yV4o09R_-t-hKr69cgcAbVobms4sTuWJj81qFL/s320/27085_100857986616004_100000754094437_23062_7936714_n.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5485118745468965762" style="cursor: pointer; width: 240px; height: 320px; " /></a></div></div><div style="text-align: center;"><br /></div>Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com2tag:blogger.com,1999:blog-7066282500827500468.post-38193281820528872092010-06-18T23:27:00.000-07:002010-06-18T23:51:50.557-07:00The Best 3hrs of Breathing<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhk1cw5pHuAD_2fAfx0r5mO7JV3PbTyePXE0-JVlJvFQPE2EpxOs6man49C7cu5HJRqoHY-3JPS1746L7o4N6tQbep_KWVPcR1elk7RNX1QFgnlL9tln1nC7qURXcEJKVrRgypfo1Rr6u8t/s1600/Photo+15.jpg"><img style="float:right; margin:0 0 10px 10px;cursor:pointer; cursor:hand;width: 320px; height: 240px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhk1cw5pHuAD_2fAfx0r5mO7JV3PbTyePXE0-JVlJvFQPE2EpxOs6man49C7cu5HJRqoHY-3JPS1746L7o4N6tQbep_KWVPcR1elk7RNX1QFgnlL9tln1nC7qURXcEJKVrRgypfo1Rr6u8t/s320/Photo+15.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5484373830379224450" /></a><br />For three hours out of the day (at least), I breathe in what feels like the best thing ever. Waking up in the morning, my lungs crave my nebulizers; they crave the antibiotics. Duoneb, the bronchiodialator, that calms my lungs from spams; trying to help them relax and clear mucus with each breath I breathe in. Next comes the Hypersal. Man does Hypersal kick my butt, but the outcome of it later in the day is well worth it. Hypersal is hypertonic saline 7%; extreme salt water for interpretation. Breathing this in is amazing, as it makes the dry thick mucus in lungs hydrated like it should be, so I can actually get things moving and get it out. It irritates my lungs a little and helps me cough stuff out that I normally never would. While I do this, I strap on my vest. My best friend calls it the shake-n-bake. There is no "bake" part but the shake part is very true, as it shakes me and percussions my lungs to move everything around so mucus doesn't build up in one place causing a lung infection. After thirty minutes of that, I start my next neb of Pulmozyme. This helps loosen up mucus and cause it to become thinner; and this one only takes about ten minutes. Lastly, I start the antibiotic nebulizer. This one takes forever, but is my favorite; for it helps me the most. Tobi targets the bacteria psuedomonas that grows in my lungs that the mucus has trapped and made a nice convenient home for. Gee, I sound like a hazard. Tobi, I do as a 28 day cycle and on my 28 days off I do another antibiotic called Coliston. This thirty minutes of nebulizer fights for me what I can't fight. I finish it up with a quick shot of Advair and meds are complete. When I'm done with everything I feel good, I feel great. This is my everyday, every morning and every night routine. It really is a love hate relationship. I hate it because I HAVE to do it, but I love it because I can breathe.Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com0tag:blogger.com,1999:blog-7066282500827500468.post-43802580746889388712010-06-16T12:20:00.000-07:002010-06-17T21:34:13.085-07:00My JobGrowing up is a little difficult. I have a job. I work for my body and Cystic Fibrosis. I've recently learned that CF is a full time job. The moment I wake up it starts by reaching over, grabbing a new nebulizer cup, getting the duoneb med, strapping on my vest, and plugging into my nebulizer; all so I can breahte. Every morning I do this for I'd say at least an hour to an hour and a half. I do that same thing at night. I also do two treatments in the middle of the day when I can fit them in. On top of all that I take many pills every morning, and even more with everything I eat. That's my first job. Of course I also need a job that makes some money. <div><br /></div><div>I finally started working again, since I've moved. I commute about a half an hour away, to work in Fresno at Buckle. Working there so far has been great. All the people I work with are very welcoming and the manager is very nice. I have been put on the team as a part-time employee. I've only ever had a part time job and I have managed it quite well. Keep in mind that my part time jobs have always been at tops around 20 hours a week. When my manager asked me if i wanted some more "full time weeks" thrown into my schedule every now and then I said "Yes," thinking that more hours means more money. Well I got this next weeks schedule and he gave me a full-time week. I'll be working some 8 hour shift. A lot of you might be thinking, "Yea so, not that big of a deal, I work that much everyday." My problem is that I already have one job without Buckle; my CF. So, yes, I am nervous for this up-coming week. I'm resting right now since I have two days off, but I am also praying that my body works with me this next week and doesn't get exhausted, weak, or sick. So, please, pray for strength for me and for my body. Thank you!<div><br /></div><div>~B</div></div>Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com1tag:blogger.com,1999:blog-7066282500827500468.post-62540857383350959732010-06-13T21:15:00.000-07:002010-06-13T21:28:41.942-07:00Working Out :)I'm starting my personal work out today! Exercising is so important for those with Cystic Fibrosis. Cardio workouts are key and keep our lungs in shape and healthy. When I was in high school I was always active everyday with cheerleading and dancing; participating in more than two hours per day. After high school I stopped doing a lot, and I think that has contributed to part of the drop in my lung function in the past couple years. So, to fix this, I plan on signing up for summer dance classes this week, and I can't wait. I have to get some exercise in to get my lung functions up; even if it's one percent at a time. My next doctor's appointment is in a little more than two weeks. I have two weeks to gain some weight and improve my health for this first "check point." Tonight I went on a bike ride for about ten minutes; but I'm going to have to drive my car around to see how far I went. I also did some stretches and a little living room dancing so I can start getting in shape for dance too. I can't wait to build some muscle; and actually have some to flex!!! :)<div style="text-align: center;"><a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhOlhqogAIw5DI9_dQnH5aNT2HWYH4FBefXyaijYpJn9qsE9bqyMdvGQlZjgJhIv5QF6H4n7UGvY00BmF9E2R5XEb1NQtlrz39sG4kzGHq0TFOVS508BJzSUqcyHpPCfex4U3-WO9f6tnEs/s1600/Photo+46.jpg"><img src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhOlhqogAIw5DI9_dQnH5aNT2HWYH4FBefXyaijYpJn9qsE9bqyMdvGQlZjgJhIv5QF6H4n7UGvY00BmF9E2R5XEb1NQtlrz39sG4kzGHq0TFOVS508BJzSUqcyHpPCfex4U3-WO9f6tnEs/s320/Photo+46.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5482480398873223154" style="cursor: pointer; width: 320px; height: 240px; " /></a></div>Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com1tag:blogger.com,1999:blog-7066282500827500468.post-8521357326903247532010-06-12T23:44:00.000-07:002010-06-12T23:58:32.516-07:00Oh, How I WIsh...I wish i could reassure you. It would be nice to know myself, what I'm going to feel like the next day. Not knowing is the worst part of it all. When someone says "Oh, you will get better," I automatically respond with something positive like "Oh I know, I will." Deep down inside when I am told something to that extent, it kills me to say a lie; because if I couldn't tell a lie I'd probably reply with "I <span class="Apple-style-span" style="color:#660000;"><i>HOPE</i></span> so, I hope I will be able to get back to where I was before." I wish the consistency in my life wasn't a cough, a hack, or deep breath every once in a while. It kills me that I'm not able to reassure you, honestly, and tell you everything will be okay.Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com2tag:blogger.com,1999:blog-7066282500827500468.post-69441859521956869122010-06-12T01:08:00.000-07:002010-06-12T02:14:01.352-07:00Short, Sweet but full of Love.<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhEW6-ylnYOsr4ie8CYW0h2H5hmQarzhl0IK2llpnuh2Z5WdI5WPx_NcD-T5Y54KVJZuwAi_oViOc1HVlIJHyg1Q-mA97bUJqbOnI9uIvQhOI8jdksVnaoevySmUaKULTdC9VqtzjWKzgBV/s1600/love-11.jpg"><img style="float:left; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 320px; height: 218px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhEW6-ylnYOsr4ie8CYW0h2H5hmQarzhl0IK2llpnuh2Z5WdI5WPx_NcD-T5Y54KVJZuwAi_oViOc1HVlIJHyg1Q-mA97bUJqbOnI9uIvQhOI8jdksVnaoevySmUaKULTdC9VqtzjWKzgBV/s320/love-11.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5481810369652426610" /></a><br />Love is not just a rose, a box of chocolates, an anniversary, or a holiday. Love is beyond that; beyond an emotion. It has the power to change anything. I choose to love with all of my heart. I agree with the saying "it is better to have loved and lost, then to have never loved at all." I believe love is strong and can touch people unexpectedly like they never thought it could; whether it be in a smile of a passing stranger, a hug from best friend, the opens arms of a family, a the butterflies from a kiss from your true love, or the unconditional love of God. Being surrounded my love my entire life, it was only natural that I would "pick it up" and pass it on as well. I am very blessed to have so many people in my life that love me; I truly am. It wasn't too long ago that I felt like I was selfish when it came to any form of love. Its a hard thing to explain.<br /><br />It sucks to say, but CF effects my relationships too, especially through my teenage years. My CF was and is something that is always on my mind, and I believe (or use to believe) was always on my friends, boyfriend, or family members mind. Sometimes I didn't want to have to get so close to another person because I felt that getting close to them was being selfish. See, I told you, hard to explain. You're probably thinking, what? Having Cystic Fibrosis I know that my time here is will be shorter. I mainly went through this difficult subject with a significant other. I didn't want to get so close to someone get married and what not then pass away, cutting them short of something that two people have the joy of sharing throughout an entire "average" lifetime. I hope this is making sense. I felt like me creating relationships or loving someone was just me setting everyone up for eventual heartbreak. I felt like a person deserves to have a full lifetime of love from someone, and not just half. Part of this, was me being afraid; not wanting to have to loose all those who mean so much to me and who I love one day, and not getting to spend more time with them.<br /><br />It was hard for me to get past this stupid idea that I had in my head, but then I realized that it was ridiculous. We are here to spread love. When I look back in my life right now, the ones that stick out are all of those filled with love, joy, and happiness. Why spend my time worrying, being afraid, and not making people happy? The truth is, is that no one really knows what is going to happen to them the next day. When I do leave (which hopefully won't be for a long time) I want to be remembered for love; and touch as many lives as I can for the better. So, with my knowledge now and how I've grown, even though I know what is "suppose" to kill me, will kill me sooner than those around me, I choose to love; and I hope you will too.<br /><br />1 Corinthias 13:13 "And now these three remain: faith, hope, and love. But the greatest of these is love."Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com0tag:blogger.com,1999:blog-7066282500827500468.post-7770950415005471172010-06-05T18:44:00.000-07:002010-06-05T19:07:54.245-07:00My CF Awareness Video<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.blogger.com/video.g?token=AD6v5dzqz_tSeBLvYgM37ejs0HlNA2jg1cr9BrUlPqkOz3xipvMppwuk07lmqiPj1PxKc-4QTKp6wesi6a3ZSqM9lw' class='b-hbp-video b-uploaded' frameborder='0'></iframe>Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com2tag:blogger.com,1999:blog-7066282500827500468.post-55522473340917299332010-06-05T15:23:00.000-07:002010-06-05T23:51:05.855-07:00Blessed with StrengthToday I've just been browsing CF sites and just relaxing, eating, and doing treatments. Strength has been on my mind. <br /><br />Being strong is what I believe is an understatement, for those who have Cystic Fibrosis. Every person I know, read about and hear about; they have more strength than anyone I know. Strength: 1. the power or state of being strong; vigor 2. mental power, force, or vigor 3. moral power, firmness or courage. Our bodies are weak. Our bodies are not strong, but we have strength to push through it all. It seems to me that those with CF have more hope. It seems that God blessed us. Giving those who he knew would have the strength to handle this disease; to turn this breath taking disease and see it as a blessing. Someone once posted a question on a CF blog site asking "if you could go back and choose to have CF or not would you?" This is a question that is easier than you might think; and you might get a different answer than you would expect. I would not want to change a thing. True, life would be so much easier, simple, less stressful. If I didn't have CF though, I wouldn't be who I am today. It has helped shaped ME, but it is not all of me. I have been faced with challenges and I have overcome them. I know that there are more battles ahead and it makes me want to continue to be hopeful, have faith, be strong, have courage; know that God does not give us more than we can handle. <br /><br />Many people pass away from Cystic Fibrosis at a young age. An age that seems unfair. In a way it is, but not entirely. Because I know what could happen, I take a different aspect on life. I know I appreciate every family member, friend, laughter, happy moment, sunny day, and breath so much more than anyone else. I love my life exactly the way it is and wouldn't change a thing because I know I am blessed.Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com0tag:blogger.com,1999:blog-7066282500827500468.post-200986056448825772010-06-01T18:48:00.000-07:002010-06-01T18:57:42.095-07:00Finally Moved!So for a few months now ive been planning this next chapter in my life. I had been planning and trying to make plans to move so I could go to school and work in Fresno; as well as relax. Looking into different living options, I found and was blessed with the perfect set up! I have family in Chowchilla, so my Uncle David is letting me live in a house he owns. I'm now living with my awesome cousin, Colleen, on the almond ranch. <br /> <br />I just moved in yesterday and I am so excited! It's so nice and I cant wait for more fun to come. I had my meeting with the manager at where I'll be working today; so hopefully I get put on the schedule soon. Other than work and having fun my goal here is to relax but still get some exercise that way I can improve my health. <br /><br />I had my one month check-up at Stanford last friday. I thought I was feeling good, though I did have a feeling I wasnt feeling better than when I got out because I had starting to cough a little that week. Unfortunately, my numbers went down 5% :( I was very disappointed in myself. On the upside of things I had gained weight, now weighing 105lbs! <br /><br />This was just a little update...more too come and pics of my new place soon!<br /><br />~BBriauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com1tag:blogger.com,1999:blog-7066282500827500468.post-8898461610030854742010-05-25T23:14:00.001-07:002010-05-25T23:46:37.323-07:00So It's Been a While...So let me catch y'all up on a few minor yet major details that have happened since I last posted. <div>
<br /></div><div>Getting sick this last time was, lets say, life changing. In one month or so, my lung function dropped 15%. The last thursday I posted was the worse I had ever been. I was short of breath the moment I would get up to walk 10ft. I had been staying in bed all day. I would walk down my stairs to the kitchen to get food dreading to have to try and make my body to walk back up the stairs, because I knew by the time I got to the top, I would be hacking/coughing, racing to get to my bed and trying to catch any breath I could. Luckily my momma came down that day, otherwise that night would've been difficult to get through by my self. I couldn't breathe. If I had gotten worse my mom said she was going to take me to the emergency room. </div><div>
<br /></div><div>The next morning, we drove to Stanford. I walked into my appointment by myself while my mom parked the car. This was my first time at the adult clinic side of Stanford. I was called to my room and the moment I walked in the lady was waiting for me to blow into the gun, that would spit back numbers that would cause me to come to realization. This was my worse PFT (pulmonary function test) ever; an FEV1 of 41%. Waiting for my mom I held back the tears that I ended up bursting out the second she walked into my room. I knew I was not going to have good numbers, but these were lower than I expected or wanted to accept. </div><div>
<br /></div><div>All of this scared me. Things had to change, starting with being admitted into the hospital. This meant I couldn't finish out my semester at Sonoma State. It was one of the hardest decisions, because I didn't want to be a failure or fail at anything. From this point I also realized that my body is unpredictable and that I cant push it so much. Realizing this meant, my body can not handle the job of being a nurse. I hate that I can't become what I have a passion for and what I've wanted to be for such a long time. Not knowing what I was going to do next with my life made me feel confused. What would I do? </div><div>
<br /></div><div>Everyone told me that I don't have to do anything; that having CF is a full time job itself. Which is true, having CF is a job and my life first before anything else. I still want to be something other than that though. I want to still be involved in the medical; I can't imagine not being in the medical field somehow. I needed to find something that wouldn't put stress on my body. So, I have decided to become a dietician and then minor in health management. It should be interesting...hopefully. </div><div>
<br /></div><div>Since I've been out of the hospital, I've been resting back at home, in Redding. I needed this. I must say it has been a little on the boring side but oh well. Soon, in less than one week, I will be moving! I'm moving down south to Chowchilla. I'll be decreasing my load of school in the fall and only be going part-time in Fresno. I decided that its not worth the rush to get sick again. I'll work a little over the summer for some cash, but my focus this summer is to start some cardio and increase my numbers so I can make it through another semester. </div><div>
<br /></div><div>To end this, thank you to everyone who has helped and been there for me the past month (Mom, Coleman, Dad, Jeff, Jesse, Kelsey, Olivia, Alyssa, Chelsa and everyone else.) You all mean the world to me and always will. You help me push through that bad times so I can have the best moments in the world with all of you! I love you all with every beat of my heart <3</div><div>
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<br /></div>Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com3tag:blogger.com,1999:blog-7066282500827500468.post-83570871456921156822010-04-29T10:08:00.000-07:002010-04-29T10:19:23.154-07:00Long night...So I haven't been feeling well, even though I have been on two oral antibiotics for over a week now. I hate feeling tired all the time, with no energy, not having a big appetite, coughing nonstop, and through the night. Last night was killer. I woke up around 3:30a.m. not being able to catch my breath. I had to do my inhaler, and it took a while for that to kick in. My body was sore from coughing so much in a short amount of time. I knew it was going to be hard to go back to sleep, and I was right. The moment I am able to relax I cough again, having to try and steady my breathing and relax all over again; its a vicious circle. So naturally I hop on my computer. Alyssa was on which was nice having someone else up to talk to (Alyssa is my friend, from my hometown, and also has CF). Watched some tv, then realized I should probably eat, since yesterday I hadn't really ate that much at all. It was now 5:30a.m. and I'm laying downstairs on the futon trying to sleep and became comfortable down there. I think I was finally able to fall asleep by 6a.m. Looooong night. I'm so tired still. <div><br /></div><div>Since I haven't been feeling great whatsoever, I am headed to Stanford tomorrow. I will probably be getting a picc line placed and we will see if I will be staying in the hospital itself for a few days, or if they will let me do treatments back at home, in Redding. </div><div><br /></div><div>My momma is coming down today though and I am so excited to see her!!! She always helps when I'm not feeling good. I love her!</div><div><br /></div><div>~B</div>Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com0tag:blogger.com,1999:blog-7066282500827500468.post-83680028048410073322010-04-25T23:10:00.000-07:002010-04-25T23:13:13.920-07:00Weekend Wrap-UpOk, so this will be a short one because i am studying and super tired from the drive back from Tahoe today. <div><br /></div><div>The wedding was soooo much fun! The weather was perfect, a little on the chilly side, but still sunny. The reception was filled with lots of dancing! I was bummed because I think for the first time I was affected by the altitude. It made me more short of breathe, making me not be able to sing :( I'm sad I wasn't able to sing for my dad. Anyways everyone had fun and I will post a few pictures tomorrow. Goodnight!</div><div><br /></div><div>~B</div>Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com0tag:blogger.com,1999:blog-7066282500827500468.post-81916643226351523532010-04-21T20:38:00.000-07:002010-04-21T20:47:29.417-07:00Sleep Now Work<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7qnm7wh4xMMNlb0IVBuC4DnOm5vGL-Kgiem-8c9mdTBi3NXT7b9lzlI6WIUj1bJShlR1rsFVCy77WAN5B95jmItJ5p1MAnCmmmmlNt8wVbZMnH2NqhyphenhyphenqiJxr5Sya00cr6xzs6Px7Wcojf/s1600/microphone.jpg"><img style="float:left; margin:0 10px 10px 0;cursor:pointer; cursor:hand;width: 245px; height: 167px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh7qnm7wh4xMMNlb0IVBuC4DnOm5vGL-Kgiem-8c9mdTBi3NXT7b9lzlI6WIUj1bJShlR1rsFVCy77WAN5B95jmItJ5p1MAnCmmmmlNt8wVbZMnH2NqhyphenhyphenqiJxr5Sya00cr6xzs6Px7Wcojf/s320/microphone.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5462803295155169858" /></a><br />Okay, so I've given my body a few days of rest and tomorrow I'm goin to start getting on this up trail to getting the lungs in better shape. <div><br /></div><div>Anyways, this weekend is my dad's wedding, in Tahoe! I'm pretty excited because it gives me a chance to see family and friends! I am also superly nervous. I'm going to be singing at the reception. I'll be singing with the band. I feel bad for my roomies because all they will be hearing the next couple days is the same song over and over as I belt my lungs out to practice for saturday. </div><div><br /></div><div>Singing is such a good cardio work out for my lungs; having to take all the deep breaths. I love it though!!! Wish me luck my voice stays here through all my coughing :)</div>Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com0tag:blogger.com,1999:blog-7066282500827500468.post-13339150495187985372010-04-20T20:36:00.000-07:002010-04-20T21:41:24.442-07:00Short and Sweet<a onblur="try {parent.deselectBloggerImageGracefully();} catch(e) {}" href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFdMZ5Z9x1JY5-yik6HZRB8o_LEka8GrYdlytqd7nbZ89gUdF21N0hOhaGuE0bh3JQdpWVgunexQJpAmr-xeQ6xpKrZsAJz5NOR_bEcnSI7MV3H7pjuPbcJXgd0EN3IY1ECRf7SKxmEkst/s1600/059.jpg"><img style="float:right; margin:0 0 10px 10px;cursor:pointer; cursor:hand;width: 300px; height: 205px;" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgFdMZ5Z9x1JY5-yik6HZRB8o_LEka8GrYdlytqd7nbZ89gUdF21N0hOhaGuE0bh3JQdpWVgunexQJpAmr-xeQ6xpKrZsAJz5NOR_bEcnSI7MV3H7pjuPbcJXgd0EN3IY1ECRf7SKxmEkst/s320/059.jpg" border="0" alt="" id="BLOGGER_PHOTO_ID_5462446132567283282" /></a><br />My body craves sleep. It craves to eat, and consume what my body will allow. It craves medications, nebulizers, vest treatments, and antibiotics. It craves to once dance like it use to be able to, to show emotions through movements. It craves love, salt, laughter, to breathe, to be free. Free to be. This is what I want and will always want; a cure. No cure means, no we can't fix you. We can try to push it back but no it won't go away. I know eventually that CF will overcome my lungs and continues to try and make me weak. The idea of this, is harsh. It's my reality that I know of but I choose to fight against. When I think about the fact that this disease is going to shorten my time here, it does make me sad. Sad, because I don't want to miss anything. I've talked to other CFer's about this too. When most people in life don't want to get old, I do. I want to be able to get married, start a perfect family, have kids, watch them grow up, graduate. I want to be a grammy one day. I want to be able to have grandkids and love them, like my grammy does. I want the simple things out of life. It's not the fear of dying. It's the fear of dying and missing out on being an impact. <div><br /></div><div>Whenever I think about this it makes me want to do everything. Makes me want to race around. Maybe that's why I tell myself to dream big, so I push myself. </div><div><br /></div><div>~B</div>Briauna Red-Petershttp://www.blogger.com/profile/08019326145269246211noreply@blogger.com4